Curiosity Drives Cures: A Message For Researchers

Although I’m the Director of Patient Initiatives at HealthiVibe, I’m also a person living with multiple sclerosis. Many of you know me as a patient advocate and in staying true to how we conduct our blog — reserving it for patients and caregivers — I’m taking off my HealthiVibe hat for a moment to speak from the patient perspective.

In honor of Clinical Trials Day, I want to share a video I’ve created thanking researchers everywhere for doing what they do to bring new medicines to market. I was diagnosed with MS in 1999 and was miserable, on a therapy that wasn’t working for me, for 8 years. When I joined a clinical trial in 2007 it changed my life.

To researchers everywhere, this one’s for you! Please watch and share.

With warm regards,
Jeri Burtchell


Curiosity Drives Cures: A Message For Researchers

This video was included as part of my submission to Stanford Medicine X. I’ll be participating as a ePatient Delegate for the second year in a row, speaking on the topic of Empathy in memory of my dear friend and colleague, Jerry Matczak from Lilly, who passed away unexpectedly earlier this year. #BeLikeJerry #CTAW #ClinicalTrialsDay #WhyWeDoResearch

MedX takes place September 15 to September 17, 2017.

Celebrating #CTAW2016 – Clinical Trials Awareness Week Roundup

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May 2-9, 2016 is Clinical Trials Awareness Week and we’ve curated some resources from the internet to help you learn and spread the message. PhRMA Hosting Tweet Chat On Clinical Trials The event will take place tomorrow, May 5, at noon EDT.  Be sure to follow @PhRMA on Twitter and use the hashtag #CTAW2016.  Latest Tweets About … Read more>>

AWARE for All Event to Raise Clinical Research Awareness & Participation

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Have you ever wondered where new medicines come from? A very high percentage of the public cannot name a place where clinical trials are conducted and most say they wouldn’t know how to go about finding or evaluating clinical trials in which to participate. Medical experts point out that only 3% of eligible patients  actually enroll in clinical trials. Lack … Read more>>

Patient Perspective: Health Activist Virginia Parks On Clinical Trial Participation

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  This guest post comes to us from Virginia Parks who has been a health activist for quite a long time. This is her story about clinical trial participation and what it has meant to her. Virginia’s Story My personal experience with clinical trials began in the late 1980’s when I participated in Phase III … Read more>>

In the Fight of Their Lives: A Caregiver Perspective on Participating in a Clinical Trial

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Our guest post today originally appeared on Anne Moore Sabatos’ blog. She and her husband Mike have been married barely over a year and they are in the battle of their lives.  From the “About Me” page of her blog, Anne writes “We were married in November of 2014. Unfortunately, he has cancer, and not … Read more>>