“Life is Precious” – I Survived a Sudden Cardiac Arrest

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By John McCaig In this blog post, guest blogger John McCaig shares his story of surviving a sudden cardiac arrest. With his second chance at life, John now works to spread awareness about this condition, which affects more than 200,000 Americans a year, and advocates for CPR training and availability of portable defibrillators. Cardiac arrest is … Read more>>

Making Peace with Crohn’s Disease

Samantha Harkins

By Samantha Harkins In this blog post, guest blogger Samantha Harkins shares her journey with inflammatory bowel disease, including several misdiagnoses, multiple surgeries and finally accepting that Crohn’s Disease is part of her identity. Twenty-one years ago, I was a 19-year-old college junior working at my job at the mall. Suddenly I doubled over in … Read more>>

Rheumatoid Arthritis: “I’m a Nurse Not a Patient”

Kathy Furbee

In this blog post, Kathleen Furbee shares her story of being diagnosed with and treated for rheumatoid arthritis and how after 10 years of treatment she is grateful for the medical advances that allow her to live a full and happy life. By Kathleen Furbee             When I was in my early fifties I came down with … Read more>>

Join Us in Making the Voice of Rare Disease Patients Heard

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By Abbe Steel, CEO HealthiVibe, LLC Today, February 29, is Rare Disease Day.  It’s an opportunity for all of us to come together to raise awareness of approximately 7,000 rare diseases, which, together, affect tens of millions of people worldwide. This year’s slogan, “Join Us in Making the Voice of Rare Diseases Heard,” puts a … Read more>>

Living the Chronic Life: Bloggers sharing stories of #chronicillness #COPD #lungcancer #heartdisease #obesity

chronic-life

Living the Chronic Life: A Web Compilation Every day people are living  their own version of a “day in the life”, coping with whatever chronic illness or condition they are facing. Some of these people chronicle their stories hoping to connect with others and share. Some to commiserate, some hoping to enlighten, and then there are … Read more>>

Trisha’s Story: Life with #Gastroparesis and How She Found Her #PatientVoice

TrishaBundy

Through the Patient Lens: Trisha’s story of living with gastroparesis and how an advocacy group has connected her to others, giving her inspiration and hope. Trisha’s working hard to raise awareness for everyone living with this terrible disease. You can find Trisha on @bundytr5 Trisha’s Story My name is Trisha and I am sharing my … Read more>>