Join Us in Making the Voice of Rare Disease Patients Heard

RDD

By Abbe Steel, CEO HealthiVibe, LLC Today, February 29, is Rare Disease Day.  It’s an opportunity for all of us to come together to raise awareness of approximately 7,000 rare diseases, which, together, affect tens of millions of people worldwide. This year’s slogan, “Join Us in Making the Voice of Rare Diseases Heard,” puts a … Read more>>

Living the Chronic Life: Bloggers sharing stories of #chronicillness #COPD #lungcancer #heartdisease #obesity

chronic-life

Living the Chronic Life: A Web Compilation Every day people are living  their own version of a “day in the life”, coping with whatever chronic illness or condition they are facing. Some of these people chronicle their stories hoping to connect with others and share. Some to commiserate, some hoping to enlighten, and then there are … Read more>>

Trisha’s Story: Life with #Gastroparesis and How She Found Her #PatientVoice

TrishaBundy

Through the Patient Lens: Trisha’s story of living with gastroparesis and how an advocacy group has connected her to others, giving her inspiration and hope. Trisha’s working hard to raise awareness for everyone living with this terrible disease. You can find Trisha on @bundytr5 Trisha’s Story My name is Trisha and I am sharing my … Read more>>