Curiosity Drives Cures: A Message For Researchers

Although I’m the Director of Patient Initiatives at HealthiVibe, I’m also a person living with multiple sclerosis. Many of you know me as a patient advocate and in staying true to how we conduct our blog — reserving it for patients and caregivers — I’m taking off my HealthiVibe hat for a moment to speak from the patient perspective.

In honor of Clinical Trials Day, I want to share a video I’ve created thanking researchers everywhere for doing what they do to bring new medicines to market. I was diagnosed with MS in 1999 and was miserable, on a therapy that wasn’t working for me, for 8 years. When I joined a clinical trial in 2007 it changed my life.

To researchers everywhere, this one’s for you! Please watch and share.

With warm regards,
Jeri Burtchell


Curiosity Drives Cures: A Message For Researchers

This video was included as part of my submission to Stanford Medicine X. I’ll be participating as a ePatient Delegate for the second year in a row, speaking on the topic of Empathy in memory of my dear friend and colleague, Jerry Matczak from Lilly, who passed away unexpectedly earlier this year. #BeLikeJerry #CTAW #ClinicalTrialsDay #WhyWeDoResearch

MedX takes place September 15 to September 17, 2017.

Angela’s Story: Inside the Mind of Someone With Chronic Illness

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Living with chronic illness can be fraught with hurdles, but when that journey begins at at a very young age, the challenges seem insurmountable. Our guest post comes from Angela, who lives with dysautonomia,  a medical term that describes a group of complex conditions caused by a malfunction of the autonomic nervous system (ANS). The ANS regulates all of … Read more>>

From Oncology Nurse to Cancer Survivor: Both Sides of the Bedside with @CmagnusMoore

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The following guest post is a reprint with permission from Christine Magnus Moore who has the dual perspective of an oncology nurse and a cancer survivor. You can find the original post on her blog at www.bothsidesofthebedside.com. Christine is the author of the book, Both Sides of the Bedside: From Oncology Nurse to Patient, an … Read more>>

Living the Chronic Life: Bloggers sharing stories of #chronicillness #COPD #lungcancer #heartdisease #obesity

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Living the Chronic Life: A Web Compilation Every day people are living  their own version of a “day in the life”, coping with whatever chronic illness or condition they are facing. Some of these people chronicle their stories hoping to connect with others and share. Some to commiserate, some hoping to enlighten, and then there are … Read more>>