“Life is Precious” – I Survived a Sudden Cardiac Arrest

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By John McCaig In this blog post, guest blogger John McCaig shares his story of surviving a sudden cardiac arrest. With his second chance at life, John now works to spread awareness about this condition, which affects more than 200,000 Americans a year, and advocates for CPR training and availability of portable defibrillators. Cardiac arrest is … Read more>>

Making Peace with Crohn’s Disease

Samantha Harkins

By Samantha Harkins In this blog post, guest blogger Samantha Harkins shares her journey with inflammatory bowel disease, including several misdiagnoses, multiple surgeries and finally accepting that Crohn’s Disease is part of her identity. Twenty-one years ago, I was a 19-year-old college junior working at my job at the mall. Suddenly I doubled over in … Read more>>

A Day in the Life of Having Type 2 Diabetes: Stay in the Moment

Phyllisa Derose

By Phyllisa Deroze In this blog post, Diabetes Advocate Phyllisa Deroze shares her story of being diagnosed with Type 2 diabetes and how it affects her life on a daily basis. When I was diagnosed with Type 2 diabetes in 2011, I was surprised, confused, and overwhelmed. My diagnosis came a week after my primary … Read more>>

Rheumatoid Arthritis: “I’m a Nurse Not a Patient”

Kathy Furbee

In this blog post, Kathleen Furbee shares her story of being diagnosed with and treated for rheumatoid arthritis and how after 10 years of treatment she is grateful for the medical advances that allow her to live a full and happy life. By Kathleen Furbee             When I was in my early fifties I came down with … Read more>>

Uterine Cancer: Why Not Me?

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In this blog post, Catherine Samargo shares her story of being diagnosed and treated for uterine cancer. She reflects upon what it was like to receive a cancer diagnosis in the midst of other family tragedies and how her mindset slowly shifted from one of victimization to one of compassion for all human beings enduring … Read more>>

Curiosity Drives Cures: A Message For Researchers

Although I’m the Director of Patient Initiatives at HealthiVibe, I’m also a person living with multiple sclerosis. Many of you know me as a patient advocate and in staying true to how we conduct our blog — reserving it for patients and caregivers — I’m taking off my HealthiVibe hat for a moment to speak from the patient perspective.

In honor of Clinical Trials Day, I want to share a video I’ve created thanking researchers everywhere for doing what they do to bring new medicines to market. I was diagnosed with MS in 1999 and was miserable, on a therapy that wasn’t working for me, for 8 years. When I joined a clinical trial in 2007 it changed my life.

To researchers everywhere, this one’s for you! Please watch and share.

With warm regards,
Jeri Burtchell


Curiosity Drives Cures: A Message For Researchers

This video was included as part of my submission to Stanford Medicine X. I’ll be participating as a ePatient Delegate for the second year in a row, speaking on the topic of Empathy in memory of my dear friend and colleague, Jerry Matczak from Lilly, who passed away unexpectedly earlier this year. #BeLikeJerry #CTAW #ClinicalTrialsDay #WhyWeDoResearch

MedX takes place September 15 to September 17, 2017.

Angela’s Story: Inside the Mind of Someone With Chronic Illness

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Living with chronic illness can be fraught with hurdles, but when that journey begins at at a very young age, the challenges seem insurmountable. Our guest post comes from Angela, who lives with dysautonomia,  a medical term that describes a group of complex conditions caused by a malfunction of the autonomic nervous system (ANS). The ANS regulates all of … Read more>>

From Oncology Nurse to Cancer Survivor: Both Sides of the Bedside with @CmagnusMoore

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The following guest post is a reprint with permission from Christine Magnus Moore who has the dual perspective of an oncology nurse and a cancer survivor. You can find the original post on her blog at www.bothsidesofthebedside.com. Christine is the author of the book, Both Sides of the Bedside: From Oncology Nurse to Patient, an … Read more>>

Living the Chronic Life: Bloggers sharing stories of #chronicillness #COPD #lungcancer #heartdisease #obesity

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Living the Chronic Life: A Web Compilation Every day people are living  their own version of a “day in the life”, coping with whatever chronic illness or condition they are facing. Some of these people chronicle their stories hoping to connect with others and share. Some to commiserate, some hoping to enlighten, and then there are … Read more>>