Heather’s Story: Hope Is The Fuel We Run On #PURASyndrome

Heather Bowie

Heather Bowie shares the story of her son Aidan and his rare disorder known as PURA Syndrome in this week’s guest post. Read more about Aidan on his mother’s blog at Family Synapse http://familysynapse.com . For information about sponsoring or attending the PURA Syndrome Conference June 23-25, 2017 in Philadelphia,  visit the PURA Syndrome Foundation website at https://www.purasyndrome.org/conference17. Also … Read more>>

A Patient Perspective on Handicapped Hotel Bathrooms

rebecca-hotel-shower

To understand life with a medical condition, all it takes is a glimpse of the world through the eyes of the patient. The following post–explaining why she finds accessible hotel bathrooms to be anything but–is reprinted with permission from the author, Rebecca Dutton, stroke survivor & occupational therapist. You can find the original post on her blog … Read more>>