Sarah’s Story: Enabled by Technology, She Paints Despite Motor Neuron Disease #MDN

DSC_3304

Meet the artist who paints with her eyes! Sarah Ezekiel was dealt a devastating blow with her diagnosis, but has used technology to overcome obstacles. You can connect with Sarah on her website or follow her on Twitter @sarahezekiel. Our latest guest blogger in our Through the Patient Lens series. Sarah’s Story I was diagnosed with … Read more>>

Raising Awareness: Rare Disease Day 2015

rare-disease-day

Rare Diseases Run the Gamut From loss of eye sight to some of the deadliest forms of cancer, people around the globe are battling conditions for which there are often no effective therapies. There is strength in numbers, and those who are diagnosed need the understanding and compassion of the rest of us. We need … Read more>>

Tom’s Story: How Parkinson’s Disease Drives One Man to Make a Difference

Mara and Tom

In this installment of our “Through the Patient Lens” Series we introduce you to Tom Eckhardt. He shares his inspiring story about being diagnosed with Parkinson’s Disease (PD), along with some surprising facts about research in PD. You can read Tom’s blog at “It Is What It Is!” and follow him on Twitter @tnrunner46. Tom’s … Read more>>

Founder of CancerHAWK Shares Her Caregiver Story

RobynStoller_CancerHAWK_family_photo

Our guest post this week comes from Robyn Stoller, CancerHawk Founder and Patient Advocate. After losing her husband to cancer, she became empowered to help others navigate the online resources available to help them fight the disease. You can find Robyn’s website at www.CancerHawk.com. She’s also @CancerHAWK on Twitter, and has a Facebook page at … Read more>>

Jenn’s Story Part 2: Caregiver Has Hope for Children with #Duchenne Muscular Dystropy

Jenn McNary

Guest blogger, Jenn McNary, shares her story of hope, caregiving for her two boys with Duchenne Muscular Dystrophy. If you are just joining us, please read part 1 of her touching story here: Jenn’s Story: Facing Duchenne’s Muscular Dystrophy Head On Jenn McNary is a single mom of 4 children living in Pembroke, Mass. She currently works … Read more>>

Jenn’s Story: Facing #Duchenne Muscular Dystrophy Head On

Jenn and Family

This week in our Through the Patient Lens series we bring you Jenn’s story of how Duchenne Muscular Dystrophy has touched the lives of her family. Jenn McNary is a single mom of 4 children living in Pembroke, Mass. She currently works as the Director of Outreach and Advocacy at the Duchenne focused Jett Foundation located in Kingston, Mass. … Read more>>

November: National Family Caregiver Month

celebrate caregivers

Caregivers are family members or friends who provide emotional or physical support to the elderly, chronically ill, or disabled. They can also be professionals who help us navigate the unknown as we face illnesses or end of life. November is National Family Caregiver Month and we’d like to celebrate the caregivers living among us. The following is … Read more>>

Misdiagnosis: Even a Nurse Can Miss the Telltale Signs

M_Hanft_cropped

As our guest blogger Marilyn Hanft, a retired RN and author of “Of Bad Lungs and Blood Clots” explains, sometimes it’s not so easy to see what’s really happening with your health. What she thought was her chronic asthma acting up turned out to be something entirely unexpected. Despite her sacrifices, Marilyn manages to remain positive. Her story is truly inspirational. … Read more>>

Through the #PatientLens: When The Caregiver Becomes Sick

Ken McKim and his wife

In our third post in our patient vignette series Ken brings us into his role of caregiver for his wife who has been diagnosed with Crohns disease. Often we focus on trying to understand the hurdles faced by patients and overlook the fact that their caregivers face them, too. Ken illustrates how everything can fall apart … Read more>>

Through the #PatientLens: Laura’s Story of Life with MS, Celiac Disease & Epilepsy

LauraFailla

In our second post in the patient vignette series meet Laura who shares her story of living with multiple chronic conditions. Laura paints a vivid picture of the never ending battle faced by many who live with invisible but debilitating fatigue. Just how does she accomplish so much? You can follow Laura on Twitter @laurafailla, … Read more>>