This week in our Through the Patient Lens series we bring you Jenn’s story of how Duchenne Muscular Dystrophy has touched the lives of her family. Jenn McNary is a single mom of 4 children living in Pembroke, Mass. She currently works as the Director of Outreach and Advocacy at the Duchenne focused Jett Foundation located in Kingston, Mass. … Read more>>
Caregivers are family members or friends who provide emotional or physical support to the elderly, chronically ill, or disabled. They can also be professionals who help us navigate the unknown as we face illnesses or end of life. November is National Family Caregiver Month and we’d like to celebrate the caregivers living among us. The following is … Read more>>
As our guest blogger Marilyn Hanft, a retired RN and author of “Of Bad Lungs and Blood Clots” explains, sometimes it’s not so easy to see what’s really happening with your health. What she thought was her chronic asthma acting up turned out to be something entirely unexpected. Despite her sacrifices, Marilyn manages to remain positive. Her story is truly inspirational. … Read more>>
In our third post in our patient vignette series Ken brings us into his role of caregiver for his wife who has been diagnosed with Crohns disease. Often we focus on trying to understand the hurdles faced by patients and overlook the fact that their caregivers face them, too. Ken illustrates how everything can fall apart … Read more>>
In our second post in the patient vignette series meet Laura who shares her story of living with multiple chronic conditions. Laura paints a vivid picture of the never ending battle faced by many who live with invisible but debilitating fatigue. Just how does she accomplish so much? You can follow Laura on Twitter @laurafailla, … Read more>>
We begin our series of patient vignettes with Annette’s story of life with rheumatoid arthritis (RA). By sharing her experience, we hope to give you a peek into the challenges some folks face every day. Story telling builds awareness, understanding, compassion, and empathy – all pillars of true patient-centricity. Annette is a MedX ePatient Delegate … Read more>>
The path which led me to HealthiVibe started with Craig Lipset, Pfizer’s Global Head of R&D, interviewing me at Disruptive Innovations in 2012. That’s when the whole idea of “patient centered” clinical trials took root for me, becoming my passion. I figured if people were willing to listen to thoughts I had on how my … Read more>>
Are you living with chronic illness or caring for someone who does? If you’d like to share your story, HealthiVibe wants to hear from you! We will be highlighting the hurdles patients face every day in order to shed light on life with disease. To learn how you can participate, please visit Share Your Story.
I have to pinch myself. I can’t believe it’s actually happening. Someone finally gets what I’ve been saying all along–and took it a step further to figure out the all important how-to-make-it-happen piece of the puzzle. “If you want to increase recruitment and retention in clinical trials, stop treating patients as mere faceless donors of … Read more>>
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