Join Us in Making the Voice of Rare Disease Patients Heard

By Abbe Steel, CEO HealthiVibe, LLC Today, February 29, is Rare Disease Day.  It’s an opportunity for all of us to come together to raise awareness of approximately 7,000 rare diseases, which, together, affect tens of millions of people worldwide. This year’s slogan, “Join Us in Making the Voice of Rare Diseases Heard,” puts a … Read more>>

NIH Proposed Changes to Informed Consent: A Patient’s Perspective

Although I am Director of Patient Initiatives at HealthiVibe, I am also a patient advocate with a passion for clinical trial participation. So I’m switching hats today in order to share a recent experience with you. The National Institutes of Health (NIH) is planning to make some changes to the Common Rule which governs the … Read more>>

Google Hangout May 6th, 3PM ET- Participating in Research – Speaker Bios #CTAW

During Clinical Trials Awareness Week, May 4-8, 2015, we will be taking part in events to raise awareness about the need for volunteers. As part of this campaign, HealthiVibe will be hosting a Google Hangout on-air broadcast about participating in research tomorrow. Join us as we hear personal stories from two clinical trial participants, explore … Read more>>

One Year Later: A Retrospective

by Abbe Steel, CEO, HealthiVibe LLC Arlington, VA, May 4, 2015 — We’ve come a long way in a year. This April marks the one-year anniversary of HealthiVibe.  We set out to create a brand new kind of company, one dedicated to bringing the voice of patients, caregivers and advocacy groups to the clinical design process.   We’ve … Read more>>

Celebrating Clinical Trials Awareness Week with a Google Hangout and Tweet Chat #CTAW2015 #CTAW

Clinical Trials Awareness Week May 4-8, 2015 May 4-8, 2015 marks Clinical Trials Awareness Week, and we hope you’ll join us for a week of activities. We’re raising awareness about the need for volunteers by shining a national spotlight on the issue. An overwhelming number of clinical trials fail solely due to lack of volunteers. … Read more>>

C.H.E.E.R. Campaign – Giving the Real Heroes the Recognition They Deserve!

Clinical Heroes Educated & Engaged in Research (CHEER) Campaign Researchers are making great strides in learning more about the diseases and conditions that can affect us all. Making breakthrough discoveries and developing cutting-edge therapies can only happen with the help of volunteers who step up to partner with scientists and participate in research studies. Every … Read more>>

Kintsugi: Insights from Colon Cancer Survivor & Author Dennis Maione

Dennis Maione of Winnipeg, Canada is a popular author, keynote speaker and storyteller who shares his genetic cancer experience with patients and medical professionals in his book,  What I Learned from Cancer. He also writes the blog at http://denniscancer.blogspot.com. March is Colon Cancer Awareness Month, so what better way to wrap it up than with a guest … Read more>>

Founder of CancerHAWK Shares Her Caregiver Story

Our guest post this week comes from Robyn Stoller, CancerHawk Founder and Patient Advocate. After losing her husband to cancer, she became empowered to help others navigate the online resources available to help them fight the disease. You can find Robyn’s website at www.CancerHawk.com. She’s also @CancerHAWK on Twitter, and has a Facebook page at … Read more>>

Disruptive Innovations: From Center Stage to Vendor Booth

The path which led me to HealthiVibe started with Craig Lipset, Pfizer’s Global Head of R&D, interviewing me at Disruptive Innovations in 2012. That’s when the whole idea of “patient centered” clinical trials took root for me, becoming my passion. I figured if people were willing to listen to thoughts I had on how my … Read more>>

From the Leading Edge: HealthiVibe and the Patient Perspective

I have to pinch myself. I can’t believe it’s actually happening. Someone finally gets what I’ve been saying all along–and took it a step further to figure out the all important how-to-make-it-happen piece of the puzzle. Find trx training workout vacaville mear me. “If you want to increase recruitment and retention in clinical trials, stop … Read more>>