My Mom’s Heart Attack

By Holly Radabaugh In this blog post, guest blogger Holly Radabaugh shares the story of how her mother survived a heart attack against all odds and emphasizes the importance of recognizing the more subtle signs of a heart attack that many women experience.  Nine years ago, my mother had a heart attack and subsequently, open … Read more>>

Celiac Disease Through the Eyes of a Teenager

By Cassidy Urbancic In this blog post, guest blogger Cassidy Urbancic shares her story of being diagnosed and learning to live with celiac disease as a young teen. According to the Celiac Disease Foundation, it is estimated that celiac disease affects one in 100 people worldwide and that 2.5 million Americans are undiagnosed and at … Read more>>

A Day in the Life of Having Type 2 Diabetes: Stay in the Moment

By Phyllisa Deroze In this blog post, Diabetes Advocate Phyllisa Deroze shares her story of being diagnosed with Type 2 diabetes and how it affects her life on a daily basis. When I was diagnosed with Type 2 diabetes in 2011, I was surprised, confused, and overwhelmed. My diagnosis came a week after my primary … Read more>>

Rennie’s Story: Looking So Good, Feeling So Bad – Living with MS

Our guest blog post today comes from Rennie R., an MS patient advocate, public speaker, and retired high school teacher, who has been living with multiple sclerosis since June 2003. She shares what it’s like to live with the invisible symptoms of MS, when you “look so good” but actually feel so bad. Visit Rennie’s … Read more>>

Who Takes Care Of The Caregiver?

Caregiving is a very important role in healthcare, but who takes care of the caregiver? Our post today comes from Beth Martel who explores this subject. Beth is a mother of two, a medical professional and a humanitarian who blogs at HealthyRecharge.com. — Who Takes Care Of The Caregiver? The duty of a caregiver for the … Read more>>

Todd’s Story: Living With Prostate Cancer – Survivor’s Guilt

Our guest post today originally appeared on Todd Seals’ blog at Living with Prostate Cancer. Todd has survived Stage 4 prostate cancer for over a decade and shares his story to inspire others. Todd is a musician and his band has played at the American Cancer Society’s Relay for Life several times. Todd also advocates for UsToo.org, an … Read more>>

Cynthia’s Story: From Bystander to Empowered Partner #multiplemyeloma

Our guest post today is a reprint of a blog post (originally published  in February 2015) from Cynthia Chmielewski, a multiple myeloma survivor and patient advocate. A retired teacher, Cynthia now teaches a new group of “students” — others who have been diagnosed with the disease. Cynthia is on the board of directors of the Philadelphia Multiple Myeloma Networking Group and on … Read more>>

Family History, Clinical Trials, Mammograms and Mastectomy: Marla’s Breast Cancer Story

Our latest guest post in our month long series dedicated to raising breast cancer awareness comes from Marla Wexler, a breast cancer survivor whose powerful image and quote about mastectomy went viral when it was first posted on Instagram nearly 2 years ago. MarlaJan Wexler is 35 years old, was born with tetralogy of Fallot, a … Read more>>

Join Us in Making the Voice of Rare Disease Patients Heard

By Abbe Steel, CEO HealthiVibe, LLC Today, February 29, is Rare Disease Day.  It’s an opportunity for all of us to come together to raise awareness of approximately 7,000 rare diseases, which, together, affect tens of millions of people worldwide. This year’s slogan, “Join Us in Making the Voice of Rare Diseases Heard,” puts a … Read more>>

NIH Proposed Changes to Informed Consent: A Patient’s Perspective

Although I am Director of Patient Initiatives at HealthiVibe, I am also a patient advocate with a passion for clinical trial participation. So I’m switching hats today in order to share a recent experience with you. The National Institutes of Health (NIH) is planning to make some changes to the Common Rule which governs the … Read more>>