Rennie’s Story: Looking So Good, Feeling So Bad – Living with MS

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Our guest blog post today comes from Rennie R., an MS patient advocate, public speaker, and retired high school teacher, who has been living with multiple sclerosis since June 2003. She shares what it’s like to live with the invisible symptoms of MS, when you “look so good” but actually feel so bad. Visit Rennie’s … Read more>>

Who Takes Care Of The Caregiver?

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Caregiving is a very important role in healthcare, but who takes care of the caregiver? Our post today comes from Beth Martel who explores this subject. Beth is a mother of two, a medical professional and a humanitarian who blogs at HealthyRecharge.com. – Who Takes Care Of The Caregiver? The duty of a caregiver for the … Read more>>

Todd’s Story: Living With Prostate Cancer – Survivor’s Guilt

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Our guest post today originally appeared on Todd Seals’ blog at Living with Prostate Cancer. Todd has survived Stage 4 prostate cancer for over a decade and shares his story to inspire others. Todd is a musician and his band has played at the American Cancer Society’s Relay for Life several times. Todd also advocates for UsToo.org, an … Read more>>

Cynthia’s Story: From Bystander to Empowered Partner #multiplemyeloma

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Our guest post today is a reprint of a blog post (originally published  in February 2015) from Cynthia Chmielewski, a multiple myeloma survivor and patient advocate. A retired teacher, Cynthia now teaches a new group of “students” — others who have been diagnosed with the disease. Cynthia is on the board of directors of the Philadelphia Multiple Myeloma Networking Group and on … Read more>>

Family History, Clinical Trials, Mammograms and Mastectomy: Marla’s Breast Cancer Story

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Our latest guest post in our month long series dedicated to raising breast cancer awareness comes from Marla Wexler, a breast cancer survivor whose powerful image and quote about mastectomy went viral when it was first posted on Instagram nearly 2 years ago. MarlaJan Wexler is 35 years old, was born with tetralogy of Fallot, a … Read more>>

Join Us in Making the Voice of Rare Disease Patients Heard

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By Abbe Steel, CEO HealthiVibe, LLC Today, February 29, is Rare Disease Day.  It’s an opportunity for all of us to come together to raise awareness of approximately 7,000 rare diseases, which, together, affect tens of millions of people worldwide. This year’s slogan, “Join Us in Making the Voice of Rare Diseases Heard,” puts a … Read more>>

NIH Proposed Changes to Informed Consent: A Patient’s Perspective

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Although I am Director of Patient Initiatives at HealthiVibe, I am also a patient advocate with a passion for clinical trial participation. So I’m switching hats today in order to share a recent experience with you. The National Institutes of Health (NIH) is planning to make some changes to the Common Rule which governs the … Read more>>

Google Hangout May 6th, 3PM ET- Participating in Research – Speaker Bios #CTAW

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During Clinical Trials Awareness Week, May 4-8, 2015, we will be taking part in events to raise awareness about the need for volunteers. As part of this campaign, HealthiVibe will be hosting a Google Hangout on-air broadcast about participating in research tomorrow. Join us as we hear personal stories from two clinical trial participants, explore … Read more>>

One Year Later: A Retrospective

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by Abbe Steel, CEO, HealthiVibe LLC Arlington, VA, May 4, 2015 – We’ve come a long way in a year. This April marks the one-year anniversary of HealthiVibe.  We set out to create a brand new kind of company, one dedicated to bringing the voice of patients, caregivers and advocacy groups to the clinical design process.   We’ve … Read more>>

Celebrating Clinical Trials Awareness Week with a Google Hangout and Tweet Chat #CTAW2015 #CTAW

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Clinical Trials Awareness Week May 4-8, 2015 May 4-8, 2015 marks Clinical Trials Awareness Week, and we hope you’ll join us for a week of activities. We’re raising awareness about the need for volunteers by shining a national spotlight on the issue. An overwhelming number of clinical trials fail solely due to lack of volunteers. … Read more>>