Founder of CancerHAWK Shares Her Caregiver Story

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Our guest post this week comes from Robyn Stoller, CancerHawk Founder and Patient Advocate. After losing her husband to cancer, she became empowered to help others navigate the online resources available to help them fight the disease. You can find Robyn’s website at www.CancerHawk.com. She’s also @CancerHAWK on Twitter, and has a Facebook page at … Read more>>

Jenn’s Story Part 2: Caregiver Has Hope for Children with #Duchenne Muscular Dystropy

Jenn McNary

Guest blogger, Jenn McNary, shares her story of hope, caregiving for her two boys with Duchenne Muscular Dystrophy. If you are just joining us, please read part 1 of her touching story here: Jenn’s Story: Facing Duchenne’s Muscular Dystrophy Head On Jenn McNary is a single mom of 4 children living in Pembroke, Mass. She currently works … Read more>>

Jenn’s Story: Facing #Duchenne Muscular Dystrophy Head On

Jenn and Family

This week in our Through the Patient Lens series we bring you Jenn’s story of how Duchenne Muscular Dystrophy has touched the lives of her family. Jenn McNary is a single mom of 4 children living in Pembroke, Mass. She currently works as the Director of Outreach and Advocacy at the Duchenne focused Jett Foundation located in Kingston, Mass. … Read more>>

Misdiagnosis: Even a Nurse Can Miss the Telltale Signs

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As our guest blogger Marilyn Hanft, a retired RN and author of “Of Bad Lungs and Blood Clots” explains, sometimes it’s not so easy to see what’s really happening with your health. What she thought was her chronic asthma acting up turned out to be something entirely unexpected. Despite her sacrifices, Marilyn manages to remain positive. Her story is truly inspirational. … Read more>>

Through the #PatientLens: Laura’s Story of Life with MS, Celiac Disease & Epilepsy

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In our second post in the patient vignette series meet Laura who shares her story of living with multiple chronic conditions. Laura paints a vivid picture of the never ending battle faced by many who live with invisible but debilitating fatigue. Just how does she accomplish so much? You can follow Laura on Twitter @laurafailla, … Read more>>

Through the #PatientLens : Annette’s Story of Life With #RA

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We begin our series of patient vignettes with Annette’s story of life with rheumatoid arthritis (RA). By sharing her experience, we hope to give you a peek into the challenges some folks face every day. Story telling builds awareness, understanding, compassion, and empathy – all pillars of true patient-centricity. Annette is a MedX ePatient Delegate … Read more>>