Anne’s Story: Adapting to Life With MS

AnneP

Learning to adapt is key to managing any chronic illness. Our guest blogger, Anne P., shares the hurdles of life with multiple sclerosis in today’s post. – Anne’s Story I have multiple sclerosis and many “MSers”, myself included, get really frustrated by the fact that our disease is often invisible. Especially in the early stages of … Read more>>

Curiosity Drives Cures: A Message For Researchers

Although I’m the Director of Patient Initiatives at HealthiVibe, I’m also a person living with multiple sclerosis. Many of you know me as a patient advocate and in staying true to how we conduct our blog — reserving it for patients and caregivers — I’m taking off my HealthiVibe hat for a moment to speak from the patient perspective.

In honor of Clinical Trials Day, I want to share a video I’ve created thanking researchers everywhere for doing what they do to bring new medicines to market. I was diagnosed with MS in 1999 and was miserable, on a therapy that wasn’t working for me, for 8 years. When I joined a clinical trial in 2007 it changed my life.

To researchers everywhere, this one’s for you! Please watch and share.

With warm regards,
Jeri Burtchell


Curiosity Drives Cures: A Message For Researchers

This video was included as part of my submission to Stanford Medicine X. I’ll be participating as a ePatient Delegate for the second year in a row, speaking on the topic of Empathy in memory of my dear friend and colleague, Jerry Matczak from Lilly, who passed away unexpectedly earlier this year. #BeLikeJerry #CTAW #ClinicalTrialsDay #WhyWeDoResearch

MedX takes place September 15 to September 17, 2017.

Linnea’s Story: Living Longer With Lung Cancer Thanks To Research

Linnea-Olson

Linnea Olson is a lung cancer patient/advocate who attributes her extended survival (diagnosed in April of 2005) to innovative medical research and clinical trials.  Extraordinarily mindful of what a gift each new day is, Linnea divides her time between her many friends, three children, art, writing, advocacy and a rather demanding little pup named Kumo. … Read more>>

Stuttering, Stress, and Chronic Illness: Ashish Shares His Psoriasis Story

AshishA

Stress has a way of making chronic illness worse, and when you toss in stuttering, the effects can feel shattering. Ashish shares his very personal story of living with psoriasis and how he’s learning to take charge of his health holistically. He blogs at http://www.psoriasisselfmanagement.com. – Ashish’s Story I first got psoriasis in Aug 2005, at … Read more>>

Angela’s Story: Inside the Mind of Someone With Chronic Illness

AngelaJ

Living with chronic illness can be fraught with hurdles, but when that journey begins at at a very young age, the challenges seem insurmountable. Our guest post comes from Angela, who lives with dysautonomia,  a medical term that describes a group of complex conditions caused by a malfunction of the autonomic nervous system (ANS). The ANS regulates all of … Read more>>

Leslie’s Story: Living with RA and Lupus

Leslie Rott

Our story this week comes from guest blogger, Leslie Rott, who is 31 years old.  She was diagnosed with lupus and rheumatoid arthritis (RA) in 2008 at the age of 22.  She holds a PhD in sociology from the University of Michigan and a master’s degree in health advocacy from Sarah Lawrence College.  She is … Read more>>

Teresa’s Story: Dear Cancer

me3

Teresa is a retired special education teacher who keeps busy with yoga, gardening, writing, a husband, a dog and cat, and four grandchildren. She has a blog at www.teresasaum.com where she writes about a variety of subjects. She likes to quote Eve Ensler, “I would never say cancer was a blessing, but it has afforded … Read more>>

Lana’s Story: When Life Handed Me Chronic Illness

LB photo

Lana Barhum lives and works in northeast Ohio. She is a legal assistant, patient advocate, freelance writer, and mother. Having lived with rheumatoid arthritis and fibromyalgia since 2008, Lana uses her experiences to share expert advice on living successfully with chronic illness. She has written for several online health communities, including Alliance Health, Mango Health, … Read more>>

Lisa’s Story: RA Holidays

LisaEmrich_Studio_05.2015

Lisa Emrich is a powerful advocate who uses her experience living with multiple sclerosis and rheumatoid arthritis to educate, empower, and inspire people living with chronic conditions. Author of the award-winning blog Brass and Ivory: Life with MS and RA, Lisa writes for RheumatoidArthritis.net, MultipleSclerosis.net, and HealthCentral.com. She is Co-chair of the Engagement Committee for … Read more>>

Julie’s Story: Sharing Is Therapeutic

JulieCerroneHeadshot

What could be more uplifting than a story about choosing to live a positive life despite adversity? Julie Cerrone shares her story (which originally appeared on her own blog) about visiting Disney and participating in the American Idol singing contest while struggling with the hurdles of living with psoriatic arthritis. Julie works for WEGO Health, and … Read more>>