“Life is Precious” – I Survived a Sudden Cardiac Arrest

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By John McCaig In this blog post, guest blogger John McCaig shares his story of surviving a sudden cardiac arrest. With his second chance at life, John now works to spread awareness about this condition, which affects more than 200,000 Americans a year, and advocates for CPR training and availability of portable defibrillators. Cardiac arrest is … Read more>>

Making Peace with Crohn’s Disease

Samantha Harkins

By Samantha Harkins In this blog post, guest blogger Samantha Harkins shares her journey with inflammatory bowel disease, including several misdiagnoses, multiple surgeries and finally accepting that Crohn’s Disease is part of her identity. Twenty-one years ago, I was a 19-year-old college junior working at my job at the mall. Suddenly I doubled over in … Read more>>

A Day in the Life of Having Type 2 Diabetes: Stay in the Moment

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By Phyllisa Deroze In this blog post, Diabetes Advocate Phyllisa Deroze shares her story of being diagnosed with Type 2 diabetes and how it affects her life on a daily basis. When I was diagnosed with Type 2 diabetes in 2011, I was surprised, confused, and overwhelmed. My diagnosis came a week after my primary … Read more>>

Rheumatoid Arthritis: “I’m a Nurse Not a Patient”

Kathy Furbee

In this blog post, Kathleen Furbee shares her story of being diagnosed with and treated for rheumatoid arthritis and how after 10 years of treatment she is grateful for the medical advances that allow her to live a full and happy life. By Kathleen Furbee             When I was in my early fifties I came down with … Read more>>

Uterine Cancer: Why Not Me?

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In this blog post, Catherine Samargo shares her story of being diagnosed and treated for uterine cancer. She reflects upon what it was like to receive a cancer diagnosis in the midst of other family tragedies and how her mindset slowly shifted from one of victimization to one of compassion for all human beings enduring … Read more>>

Who knew I had Glaucoma? I Didn’t.

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Approximately half of the glaucoma population in the U.S. goes undiagnosed  Article by Stephanie Handler Originally published by the Glaucoma Research Foundation. On April 19, 2011, I was diagnosed with glaucoma, a serious eye disease that can lead to blindness. I made an appointment with my local ophthalmology clinic in San Francisco as soon as I noticed … Read more>>

Hyperhidrosis: More Than Just Sweating

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This blog post features Molly Nair, a young woman living with hyperhidrosis. November is Hyperhidrosis Awareness Month and Ms. Nair shares how this condition has affected her life since she was in elementary school. She details what it is like to live with hyperhidrosis, the obstacles she has faced because of it, and how she … Read more>>

Jen’s Story: An Announcement – From MBC to Sarcoidosis and Beyond

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In honor of Breast Cancer Awareness Month, we bring you Jen’s story… Jen is a seven-year breast cancer survivor, though she still struggles with that term. At 32, she was mistakenly diagnosed with metastatic breast cancer. She was treated for metastatic breast cancer for four-and-a-half years before her doctors concluded that she was in remission … Read more>>

Trials and Tribulations: Navigating the Clinical Trial Space

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After being diagnosed with ovarian cancer in 2014, Karen J. Ribler, a retired association director from Washington, D.C., became an active volunteer within the ovarian cancer community. She helps educate student doctors and nurses through the Ovarian Cancer Research Fund Alliance’s Survivors Teaching Students program, and serves on the Board of Directors for Ovarian and Gynecologic Cancer Coalition/Rhonda’s … Read more>>

Alan’s Story: I have a Rare Disease and I am Crossing Borders – #RareDiseaseDay2018

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Our guest post on this Rare Disease Day 2018 comes from Alan who lives in Whales and is fighting ataxia head on. Alan is raising awareness of this disease through his blog and on social media. Connect with Alan to learn more: www.ataxiaandme.org Facebook @ataxiaandme Twitter @ataxiaandme Instagram @ataxia_and_me Alan’s Story I have a Rare … Read more>>