Melanoma: A Warrior for Life

By Cathy Moore In this blog post, Cathy Moore shares the journey she and her husband John travelled together after he was diagnosed with melanoma at age 47. May is Melanoma Awareness Month. Melanoma . . . The mention of that word still triggers my warrior’s instinct. My senses keen, I sit up straighter, and … Read more>>

Rheumatoid Arthritis: “I’m a Nurse Not a Patient”

In this blog post, Kathleen Furbee shares her story of being diagnosed with and treated for rheumatoid arthritis and how after 10 years of treatment she is grateful for the medical advances that allow her to live a full and happy life. By Kathleen Furbee             When I was in my early fifties I came down with … Read more>>

Uterine Cancer: Why Not Me?

In this blog post, Catherine Samargo shares her story of being diagnosed and treated for uterine cancer. She reflects upon what it was like to receive a cancer diagnosis in the midst of other family tragedies and how her mindset slowly shifted from one of victimization to one of compassion for all human beings enduring … Read more>>

Who knew I had Glaucoma? I Didn’t.

Approximately half of the glaucoma population in the U.S. goes undiagnosed  Article by Stephanie Handler Originally published by the Glaucoma Research Foundation. On April 19, 2011, I was diagnosed with glaucoma, a serious eye disease that can lead to blindness. I made an appointment with my local ophthalmology clinic in San Francisco as soon as I noticed … Read more>>

Christmastime Can Present More Challenges Than Cheer for Chronic Lyme Disease Patients

By Jill A. Ross This blog post shares the perspectives of members of the North Central West Virginia Lyme Community (NCWVLC), a support group for Chronic Lyme Disease patients, about how living with a serious chronic illness has affected their ability to participate in the holidays and how overextending themselves during this busy season can … Read more>>

Jen’s Story: An Announcement – From MBC to Sarcoidosis and Beyond

In honor of Breast Cancer Awareness Month, we bring you Jen’s story… Jen is a seven-year breast cancer survivor, though she still struggles with that term. At 32, she was mistakenly diagnosed with metastatic breast cancer. She was treated for metastatic breast cancer for four-and-a-half years before her doctors concluded that she was in remission … Read more>>

Trials and Tribulations: Navigating the Clinical Trial Space

After being diagnosed with ovarian cancer in 2014, Karen J. Ribler, a retired association director from Washington, D.C., became an active volunteer within the ovarian cancer community. She helps educate student doctors and nurses through the Ovarian Cancer Research Fund Alliance’s Survivors Teaching Students program, and serves on the Board of Directors for Ovarian and Gynecologic Cancer Coalition/Rhonda’s … Read more>>

Rennie’s Story: Looking So Good, Feeling So Bad – Living with MS

Our guest blog post today comes from Rennie R., an MS patient advocate, public speaker, and retired high school teacher, who has been living with multiple sclerosis since June 2003. She shares what it’s like to live with the invisible symptoms of MS, when you “look so good” but actually feel so bad. Visit Rennie’s … Read more>>

Caregiver Becomes Patient: Danielle’s Story

Danielle, a Stanford Medicine X ePatient Delegate and fierce advocate for her daughter’s rare health condition, shares her own personal story about what it’s like when the caregiver becomes the patient. You can find Danielle on social media: Twitter: @Danielle_Edges Blog: http://lifeishardwearahelmetadventuresinlife.blogspot.com Facebook page devoted to her daughter: https://www.facebook.com/AlexandrasJourney/ — Caregiver Becomes Patient On July 5, … Read more>>

Melissa’s Story: The Work That Comes With Being A Patient

Meet today’s guest blogger, Melissa, a MedX ePatient Scholar and patient advocate living with Sjogren’s (“SHOW-grins”) Syndrome, autoimmune arthritis, and chronic pain. Melissa shares what it’s like to deal with the daily frustrations that face the chronically ill. You can find Melissa on Twitter as @710dot9, and she blog at 710dot9.tumblr.com. You can learn more about Sjogren’s Syndrome from … Read more>>