Uterine Cancer: Why Not Me?

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In this blog post, Catherine Samargo shares her story of being diagnosed and treated for uterine cancer. She reflects upon what it was like to receive a cancer diagnosis in the midst of other family tragedies and how her mindset slowly shifted from one of victimization to one of compassion for all human beings enduring … Read more>>

Who knew I had Glaucoma? I Didn’t.

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Approximately half of the glaucoma population in the U.S. goes undiagnosed  Article by Stephanie Handler Originally published by the Glaucoma Research Foundation. On April 19, 2011, I was diagnosed with glaucoma, a serious eye disease that can lead to blindness. I made an appointment with my local ophthalmology clinic in San Francisco as soon as I noticed … Read more>>

Christmastime Can Present More Challenges Than Cheer for Chronic Lyme Disease Patients

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By Jill A. Ross This blog post shares the perspectives of members of the North Central West Virginia Lyme Community (NCWVLC), a support group for Chronic Lyme Disease patients, about how living with a serious chronic illness has affected their ability to participate in the holidays and how overextending themselves during this busy season can … Read more>>

Jen’s Story: An Announcement – From MBC to Sarcoidosis and Beyond

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In honor of Breast Cancer Awareness Month, we bring you Jen’s story… Jen is a seven-year breast cancer survivor, though she still struggles with that term. At 32, she was mistakenly diagnosed with metastatic breast cancer. She was treated for metastatic breast cancer for four-and-a-half years before her doctors concluded that she was in remission … Read more>>

Trials and Tribulations: Navigating the Clinical Trial Space

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After being diagnosed with ovarian cancer in 2014, Karen J. Ribler, a retired association director from Washington, D.C., became an active volunteer within the ovarian cancer community. She helps educate student doctors and nurses through the Ovarian Cancer Research Fund Alliance’s Survivors Teaching Students program, and serves on the Board of Directors for Ovarian and Gynecologic Cancer Coalition/Rhonda’s … Read more>>

Rennie’s Story: Looking So Good, Feeling So Bad – Living with MS

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Our guest blog post today comes from Rennie R., an MS patient advocate, public speaker, and retired high school teacher, who has been living with multiple sclerosis since June 2003. She shares what it’s like to live with the invisible symptoms of MS, when you “look so good” but actually feel so bad. Visit Rennie’s … Read more>>

Caregiver Becomes Patient: Danielle’s Story

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Danielle, a Stanford Medicine X ePatient Delegate and fierce advocate for her daughter’s rare health condition, shares her own personal story about what it’s like when the caregiver becomes the patient. You can find Danielle on social media: Twitter: @Danielle_Edges Blog: http://lifeishardwearahelmetadventuresinlife.blogspot.com Facebook page devoted to her daughter: https://www.facebook.com/AlexandrasJourney/ — Caregiver Becomes Patient On July 5, … Read more>>

Melissa’s Story: The Work That Comes With Being A Patient

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Meet today’s guest blogger, Melissa, a MedX ePatient Scholar and patient advocate living with Sjogren’s (“SHOW-grins”) Syndrome, autoimmune arthritis, and chronic pain. Melissa shares what it’s like to deal with the daily frustrations that face the chronically ill. You can find Melissa on Twitter as @710dot9, and she blog at 710dot9.tumblr.com. You can learn more about Sjogren’s Syndrome from … Read more>>

Sarah’s Stanford MedX Ignite! Talk On Acknowledging Needs Of Your Caregiver

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Stanford is home to Medicine X (MedX), where the philosophy is that everyone–including patients, caregivers and family members–are equal stakeholders in medicine with their own expertise and valuable stories to share. By creating a culture in which everyone’s voice is trusted and respected, real change can take place in healthcare and medicine. MedX ePatient Ignite! … Read more>>

Kate’s Story: Her Life With Type 2 Diabetes Is Getting Better #T2D

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Our post today is reprinted with permission from the author, Kate Cornell who blogs about life with type 2 diabetes at http://kates-sweet-success.blogspot.com/. — My Life with Type 2 Diabetes: It’s getting better I haven’t felt compelled to write much lately. Sometimes I feel as if I’ve said it all, numerous times. Other times I feel … Read more>>