Caregiver Becomes Patient: Danielle’s Story

Danielle

Danielle, a Stanford Medicine X ePatient Delegate and fierce advocate for her daughter’s rare health condition, shares her own personal story about what it’s like when the caregiver becomes the patient. You can find Danielle on social media: Twitter: @Danielle_Edges Blog: http://lifeishardwearahelmetadventuresinlife.blogspot.com Facebook page devoted to her daughter: https://www.facebook.com/AlexandrasJourney/ — Caregiver Becomes Patient On July 5, … Read more>>

Melissa’s Story: The Work That Comes With Being A Patient

KERN-170422-Melissa_Hicks_05 (2)

Meet today’s guest blogger, Melissa, a MedX ePatient Scholar and patient advocate living with Sjogren’s (“SHOW-grins”) Syndrome, autoimmune arthritis, and chronic pain. Melissa shares what it’s like to deal with the daily frustrations that face the chronically ill. You can find Melissa on Twitter as @710dot9, and she blog at 710dot9.tumblr.com. You can learn more about Sjogren’s Syndrome from … Read more>>

Sarah’s Stanford MedX Ignite! Talk On Acknowledging Needs Of Your Caregiver

Screen Shot 2017-03-06 at 8.06.24 AM

Stanford is home to Medicine X (MedX), where the philosophy is that everyone–including patients, caregivers and family members–are equal stakeholders in medicine with their own expertise and valuable stories to share. By creating a culture in which everyone’s voice is trusted and respected, real change can take place in healthcare and medicine. MedX ePatient Ignite! … Read more>>

Kate’s Story: Her Life With Type 2 Diabetes Is Getting Better #T2D

Screen Shot 2016-12-19 at 1.04.23 PM

Our post today is reprinted with permission from the author, Kate Cornell who blogs about life with type 2 diabetes at http://kates-sweet-success.blogspot.com/. — My Life with Type 2 Diabetes: It’s getting better I haven’t felt compelled to write much lately. Sometimes I feel as if I’ve said it all, numerous times. Other times I feel … Read more>>

The Importance of Clinical Trials

CT

Joining a clinical trial may be the most important step a mesothelioma patient or any cancer patient can make — taking a leap of faith that goes well beyond your own best interest. Clinical trials are scientific studies where new breakthroughs, such as treatments, drugs and other therapies, are first tested on patients to determine … Read more>>

Teresa’s Story: Dear Cancer

me3

Teresa is a retired special education teacher who keeps busy with yoga, gardening, writing, a husband, a dog and cat, and four grandchildren. She has a blog at www.teresasaum.com where she writes about a variety of subjects. She likes to quote Eve Ensler, “I would never say cancer was a blessing, but it has afforded … Read more>>

Lana’s Story: When Life Handed Me Chronic Illness

LB photo

Lana Barhum lives and works in northeast Ohio. She is a legal assistant, patient advocate, freelance writer, and mother. Having lived with rheumatoid arthritis and fibromyalgia since 2008, Lana uses her experiences to share expert advice on living successfully with chronic illness. She has written for several online health communities, including Alliance Health, Mango Health, … Read more>>

Lisa’s Story: RA Holidays

LisaEmrich_Studio_05.2015

Lisa Emrich is a powerful advocate who uses her experience living with multiple sclerosis and rheumatoid arthritis to educate, empower, and inspire people living with chronic conditions. Author of the award-winning blog Brass and Ivory: Life with MS and RA, Lisa writes for RheumatoidArthritis.net, MultipleSclerosis.net, and HealthCentral.com. She is Co-chair of the Engagement Committee for … Read more>>

Jen’s Breast Cancer Story: FIGHT SONG!

jen

As we wrap up our month long tribute to breast cancer awareness, our final story comes from our very own Director of Operations, Jen Kelly, who shares her own personal caregiver story. Thank you to all of our guest bloggers who wrote guest posts for us this month. If you haven’t read them, please be … Read more>>

Cynthia’s Breast Cancer Story: Trilogy of Terror

trilogy of terror pic

Throughout the month of October, we are dedicating our blog to stories of breast cancer. This blog post, from guest blogger Cynthia, is the fourth in our series. Cynthia is the mother of 3 fabulous now-grown homeschooled children, now married to the love of her life and living in wooded, wedded bliss in a tiny … Read more>>