Stuttering, Stress, and Chronic Illness: Ashish Shares His Psoriasis Story

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Stress has a way of making chronic illness worse, and when you toss in stuttering, the effects can feel shattering. Ashish shares his very personal story of living with psoriasis and how he’s learning to take charge of his health holistically. He blogs at http://www.psoriasisselfmanagement.com. – Ashish’s Story I first got psoriasis in Aug 2005, at … Read more>>

Heather’s Story: Hope Is The Fuel We Run On #PURASyndrome

Heather Bowie

Heather Bowie shares the story of her son Aidan and his rare disorder known as PURA Syndrome in this week’s guest post. Read more about Aidan on his mother’s blog at Family Synapse http://familysynapse.com . For information about sponsoring or attending the PURA Syndrome Conference June 23-25, 2017 in Philadelphia,  visit the PURA Syndrome Foundation website at https://www.purasyndrome.org/conference17. Also … Read more>>

Sarah’s Stanford MedX Ignite! Talk On Acknowledging Needs Of Your Caregiver

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Stanford is home to Medicine X (MedX), where the philosophy is that everyone–including patients, caregivers and family members–are equal stakeholders in medicine with their own expertise and valuable stories to share. By creating a culture in which everyone’s voice is trusted and respected, real change can take place in healthcare and medicine. MedX ePatient Ignite! … Read more>>