Linnea’s Story: Living Longer With Lung Cancer Thanks To Research

Linnea-Olson

Linnea Olson is a lung cancer patient/advocate who attributes her extended survival (diagnosed in April of 2005) to innovative medical research and clinical trials.  Extraordinarily mindful of what a gift each new day is, Linnea divides her time between her many friends, three children, art, writing, advocacy and a rather demanding little pup named Kumo. … Read more>>

Stuttering, Stress, and Chronic Illness: Ashish Shares His Psoriasis Story

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Stress has a way of making chronic illness worse, and when you toss in stuttering, the effects can feel shattering. Ashish shares his very personal story of living with psoriasis and how he’s learning to take charge of his health holistically. He blogs at http://www.psoriasisselfmanagement.com. – Ashish’s Story I first got psoriasis in Aug 2005, at … Read more>>

Heather’s Story: Hope Is The Fuel We Run On #PURASyndrome

Heather Bowie

Heather Bowie shares the story of her son Aidan and his rare disorder known as PURA Syndrome in this week’s guest post. Read more about Aidan on his mother’s blog at Family Synapse http://familysynapse.com . For information about sponsoring or attending the PURA Syndrome Conference June 23-25, 2017 in Philadelphia,  visit the PURA Syndrome Foundation website at https://www.purasyndrome.org/conference17. Also … Read more>>

Sarah’s Stanford MedX Ignite! Talk On Acknowledging Needs Of Your Caregiver

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Stanford is home to Medicine X (MedX), where the philosophy is that everyone–including patients, caregivers and family members–are equal stakeholders in medicine with their own expertise and valuable stories to share. By creating a culture in which everyone’s voice is trusted and respected, real change can take place in healthcare and medicine. MedX ePatient Ignite! … Read more>>

Who Takes Care Of The Caregiver?

Beth Martel

Caregiving is a very important role in healthcare, but who takes care of the caregiver? Our post today comes from Beth Martel who explores this subject. Beth is a mother of two, a medical professional and a humanitarian who blogs at HealthyRecharge.com. – Who Takes Care Of The Caregiver? The duty of a caregiver for the … Read more>>

Angela’s Story: Inside the Mind of Someone With Chronic Illness

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Living with chronic illness can be fraught with hurdles, but when that journey begins at at a very young age, the challenges seem insurmountable. Our guest post comes from Angela, who lives with dysautonomia,  a medical term that describes a group of complex conditions caused by a malfunction of the autonomic nervous system (ANS). The ANS regulates all of … Read more>>

Leslie’s Story: Living with RA and Lupus

Leslie Rott

Our story this week comes from guest blogger, Leslie Rott, who is 31 years old.  She was diagnosed with lupus and rheumatoid arthritis (RA) in 2008 at the age of 22.  She holds a PhD in sociology from the University of Michigan and a master’s degree in health advocacy from Sarah Lawrence College.  She is … Read more>>

Todd’s Story: Living With Prostate Cancer – Survivor’s Guilt

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Our guest post today originally appeared on Todd Seals’ blog at Living with Prostate Cancer. Todd has survived Stage 4 prostate cancer for over a decade and shares his story to inspire others. Todd is a musician and his band has played at the American Cancer Society’s Relay for Life several times. Todd also advocates for UsToo.org, an … Read more>>

Cynthia’s Story: From Bystander to Empowered Partner #multiplemyeloma

Cindy Headshot

Our guest post today is a reprint of a blog post (originally published  in February 2015) from Cynthia Chmielewski, a multiple myeloma survivor and patient advocate. A retired teacher, Cynthia now teaches a new group of “students” — others who have been diagnosed with the disease. Cynthia is on the board of directors of the Philadelphia Multiple Myeloma Networking Group and on … Read more>>

Kate’s Story: Her Life With Type 2 Diabetes Is Getting Better #T2D

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Our post today is reprinted with permission from the author, Kate Cornell who blogs about life with type 2 diabetes at http://kates-sweet-success.blogspot.com/. — My Life with Type 2 Diabetes: It’s getting better I haven’t felt compelled to write much lately. Sometimes I feel as if I’ve said it all, numerous times. Other times I feel … Read more>>